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	<title>Comments for Dr. Cook&#039;s Endometriosis and Pelvic Pain Blog</title>
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	<link>http://www.vitalhealth.com/blog</link>
	<description>Dr. Andrew Cook, endometriosis surgeon at Vital Health Institute is an internationally recognized expert in the treatment of endometriosis and pelvic pain.</description>
	<lastBuildDate>Wed, 01 Feb 2012 22:41:02 +0000</lastBuildDate>
	
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		<title>Comment on What It Really Means to Have Endometriosis by kat</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-35559</link>
		<dc:creator>kat</dc:creator>
		<pubDate>Wed, 01 Feb 2012 22:41:02 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-35559</guid>
		<description>I&#039;m 27 and I&#039;ve been suffering of very painful periods since I can remember.. I&#039;ve always had pain during my cycle but I though it was normal.. A few yrs back I started getting pain not only during my menstrual but all the time.. Pain is so bad that i can&#039;t walk its just too much..I was Diagnose with Endo a few months back cause before then nobody knew what was wrong, I recently had surgery on November to clean out my organs and all. My husband and I been trying to get pregnant for a while now and it just doesn&#039;t happen.. Now after the surgery I was hoping for something to happen but nothing yet.. Its so frustrating when your trying so hard and nothing happens.. I don&#039;t want to get treatments cause I really wanna have a baby very soon.. Its just all so confusing and I just don&#039;t know what to do or where to turn. I&#039;ll keep trying for a little longer to see what happens. Fingers crossed we&#039;ll get pregnant someday.. I&#039;m glad i found this website and now know that I&#039;m not alone on this. my heart goes out to everybody in this situation..</description>
		<content:encoded><![CDATA[<p>I&#8217;m 27 and I&#8217;ve been suffering of very painful periods since I can remember.. I&#8217;ve always had pain during my cycle but I though it was normal.. A few yrs back I started getting pain not only during my menstrual but all the time.. Pain is so bad that i can&#8217;t walk its just too much..I was Diagnose with Endo a few months back cause before then nobody knew what was wrong, I recently had surgery on November to clean out my organs and all. My husband and I been trying to get pregnant for a while now and it just doesn&#8217;t happen.. Now after the surgery I was hoping for something to happen but nothing yet.. Its so frustrating when your trying so hard and nothing happens.. I don&#8217;t want to get treatments cause I really wanna have a baby very soon.. Its just all so confusing and I just don&#8217;t know what to do or where to turn. I&#8217;ll keep trying for a little longer to see what happens. Fingers crossed we&#8217;ll get pregnant someday.. I&#8217;m glad i found this website and now know that I&#8217;m not alone on this. my heart goes out to everybody in this situation..</p>
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		<title>Comment on What It Really Means to Have Endometriosis by kristina</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-35443</link>
		<dc:creator>kristina</dc:creator>
		<pubDate>Tue, 31 Jan 2012 06:04:21 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-35443</guid>
		<description>i am a 25 year old, who has been dealing with IBS, since i was young and i have had to deal with the pain of my endometriosis since i was 17. i was lucky enough to be able to have a child three years ago... but since she was born the pain of the disease has taken a turn for the worse. Not only do i still deal with the IBS on a daily basis but without a period i have severe pain. It hurts me most to know that i am missing out on things with my daughter when i&#039;m laid up in bed... And i cant speak for anyone else but standing EIGHT HOUR on my feet at a job or even a family get together just means to me that the heating pad and i will be meeting up when i get home. I don&#039;t like that myself and may other women have to live in pain... I want nothing but help for all of us. May we get our Family life, Social life, Sex life, and CONTROL back.</description>
		<content:encoded><![CDATA[<p>i am a 25 year old, who has been dealing with IBS, since i was young and i have had to deal with the pain of my endometriosis since i was 17. i was lucky enough to be able to have a child three years ago&#8230; but since she was born the pain of the disease has taken a turn for the worse. Not only do i still deal with the IBS on a daily basis but without a period i have severe pain. It hurts me most to know that i am missing out on things with my daughter when i&#8217;m laid up in bed&#8230; And i cant speak for anyone else but standing EIGHT HOUR on my feet at a job or even a family get together just means to me that the heating pad and i will be meeting up when i get home. I don&#8217;t like that myself and may other women have to live in pain&#8230; I want nothing but help for all of us. May we get our Family life, Social life, Sex life, and CONTROL back.</p>
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		<title>Comment on What It Really Means to Have Endometriosis by Cindy</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-35412</link>
		<dc:creator>Cindy</dc:creator>
		<pubDate>Mon, 30 Jan 2012 17:47:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-35412</guid>
		<description>Its is truly disheartening to see how many of us have to experience not only the pain but the constant neglect from our doctors who are supposed to be here to help. Instead they push us off to the side because &quot;nothing can be done&quot;. We spend so much time, money and efforts to find cures for other diseases, which I am in no way shape or form criticizing, but it would be nice to see someone..anyone taking a little time to find a better treatment for what we deal with. Pain meds no longer work for me and I keep putting off a hysterectomy because I cant deal with the knowledge that children are not in my future. I was diagnosed the day I turned 21 and I am now 30. I have been on Lupron and Depo neither of which really work. The Depo suppresses the menstrual cycle but not the pain. I have been on Depo since 22 and it emotional pain is a close runner up to the physical pain. Ever since I can remember I have wanted to be a mother and every 3 months when its time for more Depo I am in tears at the Doctors office. They look at me like I am exaggerating and all I want to say is &quot;walk a day in my shoes and then look at me the same way&quot;. I have an amazing boyfriend whom is an RN and he is extremely empathetic when I have pain but I know he really doesn&#039;t get it. I fight through the pain of intercourse and the pain and bleeding that follows. The reality of the situation is no one but those of us which endure this disease truly understand what we go through. It would be nice to be able to have someone to talk to when the depression sets in or when a really bad pain day hits. Yeah I have friends but they don&#039;t get it. I fight through pain at work which is difficult seeing as how I am a Police Officer and the weight of all my gear doesn&#039;t exactly help when I&#039;m having a pain day. I find myself fighting tears and trying to stay strong but all my strength is slowing dwindling away. I pray everyday for someone to care just a tiny bit and try and find a better treatment. I also pray that each of you are able to find peace and understanding with dealing with the day in day out BS of this disease.</description>
		<content:encoded><![CDATA[<p>Its is truly disheartening to see how many of us have to experience not only the pain but the constant neglect from our doctors who are supposed to be here to help. Instead they push us off to the side because &#8220;nothing can be done&#8221;. We spend so much time, money and efforts to find cures for other diseases, which I am in no way shape or form criticizing, but it would be nice to see someone..anyone taking a little time to find a better treatment for what we deal with. Pain meds no longer work for me and I keep putting off a hysterectomy because I cant deal with the knowledge that children are not in my future. I was diagnosed the day I turned 21 and I am now 30. I have been on Lupron and Depo neither of which really work. The Depo suppresses the menstrual cycle but not the pain. I have been on Depo since 22 and it emotional pain is a close runner up to the physical pain. Ever since I can remember I have wanted to be a mother and every 3 months when its time for more Depo I am in tears at the Doctors office. They look at me like I am exaggerating and all I want to say is &#8220;walk a day in my shoes and then look at me the same way&#8221;. I have an amazing boyfriend whom is an RN and he is extremely empathetic when I have pain but I know he really doesn&#8217;t get it. I fight through the pain of intercourse and the pain and bleeding that follows. The reality of the situation is no one but those of us which endure this disease truly understand what we go through. It would be nice to be able to have someone to talk to when the depression sets in or when a really bad pain day hits. Yeah I have friends but they don&#8217;t get it. I fight through pain at work which is difficult seeing as how I am a Police Officer and the weight of all my gear doesn&#8217;t exactly help when I&#8217;m having a pain day. I find myself fighting tears and trying to stay strong but all my strength is slowing dwindling away. I pray everyday for someone to care just a tiny bit and try and find a better treatment. I also pray that each of you are able to find peace and understanding with dealing with the day in day out BS of this disease.</p>
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		<title>Comment on What It Really Means to Have Endometriosis by julie</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-35280</link>
		<dc:creator>julie</dc:creator>
		<pubDate>Sat, 28 Jan 2012 17:34:33 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-35280</guid>
		<description>My daughter who is 37 today has suffered with this all her life. after reading this article I really feel for her.</description>
		<content:encoded><![CDATA[<p>My daughter who is 37 today has suffered with this all her life. after reading this article I really feel for her.</p>
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		<title>Comment on What It Really Means to Have Endometriosis by Janet</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-35208</link>
		<dc:creator>Janet</dc:creator>
		<pubDate>Fri, 27 Jan 2012 11:43:02 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-35208</guid>
		<description>I was diagnosed with Stage 4 endo almost 2 years ago, during a surgery to remove chocolate cysts and have my right ovary removed. I always had very painful periods, but chalked it up to being a woman...now that I&#039;m in my 40&#039;s, the pain I feel is pretty much constant. I take pain pills daily, get tired out quickly, and yet still have to maintain a high-level career, home and family...I have been considering a full hysterectomy, but obviously, as I&#039;ve read here and other places, that cannot guarantee eradication of this disease. Trying to explain to my husband the level of pain that I am in is nearly fruitless. He just looks at all of the pain pills I take and thinks I am an addict. The reality of it is that if I don&#039;t take the pain pills, I can barely function. I am scared of Lupron treatments, as my GYN recommended to me right after she did my surgery. I&#039;m sooo tired of feeling the need to prove to everyone that, although I look healthy on the outside, the pain remains on the inside...having this disease is kind of sad. Indeed.</description>
		<content:encoded><![CDATA[<p>I was diagnosed with Stage 4 endo almost 2 years ago, during a surgery to remove chocolate cysts and have my right ovary removed. I always had very painful periods, but chalked it up to being a woman&#8230;now that I&#8217;m in my 40&#8217;s, the pain I feel is pretty much constant. I take pain pills daily, get tired out quickly, and yet still have to maintain a high-level career, home and family&#8230;I have been considering a full hysterectomy, but obviously, as I&#8217;ve read here and other places, that cannot guarantee eradication of this disease. Trying to explain to my husband the level of pain that I am in is nearly fruitless. He just looks at all of the pain pills I take and thinks I am an addict. The reality of it is that if I don&#8217;t take the pain pills, I can barely function. I am scared of Lupron treatments, as my GYN recommended to me right after she did my surgery. I&#8217;m sooo tired of feeling the need to prove to everyone that, although I look healthy on the outside, the pain remains on the inside&#8230;having this disease is kind of sad. Indeed.</p>
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		<title>Comment on What It Really Means to Have Endometriosis by Karen</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-35193</link>
		<dc:creator>Karen</dc:creator>
		<pubDate>Fri, 27 Jan 2012 04:41:48 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-35193</guid>
		<description>Hello to all you ladies who share this HORRIBLE disorder. I call it a disorder rather than a disease, to me it makes me feel more normal.

I&#039;ll be 33 this year and have had Endo since I was 17. I&#039;ll be on surgery #9 (#9 coming this summer) and joke with my Dr&#039;s that they should just add a zipper in me. Having a partial Hystro in 07 only helped a bit. Now instead of one huge (almost 12cm) endo tumor I have 4 lime sized ones on my only (right ovary). but I swear for me not being on birth control has leveled out my hormones and my cysts have slowed down on growth. Something my Dr&#039;s didn&#039;t think would happen.  

Dr&#039;s have had me on so many different birth control pills trying to list them they all escape my memory. Nothing helps, Lupron is from hell and depo is the Devil! Not even pain pills sometimes help, you feel like your being ripped apart &amp; dying inside &amp; forget about walking, sitting or trying to drive a 5 speed to the dr&#039;s! Even on my good days I&#039;m afraid to leave anywhere that has electricity. I live with my heating pad, I carry one in my purse. Really, seriously.. no joke! They are the best invention EVER!

I have a dirt bike and LOVE to go out and play and have fun but 80% of the time I&#039;m unable to and it&#039;s SO SAD. I&#039;m missing out on life. When I think about it I cry, like now. This is a horrible disorder that has haunted me for almost 16yrs. It completely grabs me when I think about all these yrs that I have suffered. You know this is heredity (don&#039;t think I spelled that right, sorry), both my aunts have this and my grandmother did too. But they all had kids young and had full Hystos. Plussss LUCKY me I have it the worst out of them all. So bad I had to have my appendix remove and it&#039;s now covered my intestines, bladder, uterus...just about everything. My whole abdominal cavity I&#039;ve had lasered as well as cauterized. It just gets worse and; worse. It&#039;s even on my friggin liver! I mean come on! :( 

I stopped taking birth control a year &amp; a half ago. No babies! So I have an appt with a fertility Dr in 3 weeks to see if I&#039;m fertile. I&#039;m nervous, I already know the answer without going but I have to so I have no regrets. I don&#039;t believe in IVF so it&#039;s adoption for me. I guess that&#039;s my path. 

I feel so bad for anyone who has this disorder. It&#039;s very misunderstood and not very accepted. Most people think you are faking the pain and even most Dr&#039;s are leery about what&#039;s going on inside and; can&quot;t just cut you open to see.

I&#039;ve been in and out of the ER so many times it&#039;s unbelievable, but I do have to say since I&#039;ve been off the pill I actually have LESS cramps. But I have had multiple transfusions from the bleeding.

So I wish everyone you all the best of luck and health! Happy 2012!</description>
		<content:encoded><![CDATA[<p>Hello to all you ladies who share this HORRIBLE disorder. I call it a disorder rather than a disease, to me it makes me feel more normal.</p>
<p>I&#8217;ll be 33 this year and have had Endo since I was 17. I&#8217;ll be on surgery #9 (#9 coming this summer) and joke with my Dr&#8217;s that they should just add a zipper in me. Having a partial Hystro in 07 only helped a bit. Now instead of one huge (almost 12cm) endo tumor I have 4 lime sized ones on my only (right ovary). but I swear for me not being on birth control has leveled out my hormones and my cysts have slowed down on growth. Something my Dr&#8217;s didn&#8217;t think would happen.  </p>
<p>Dr&#8217;s have had me on so many different birth control pills trying to list them they all escape my memory. Nothing helps, Lupron is from hell and depo is the Devil! Not even pain pills sometimes help, you feel like your being ripped apart &amp; dying inside &amp; forget about walking, sitting or trying to drive a 5 speed to the dr&#8217;s! Even on my good days I&#8217;m afraid to leave anywhere that has electricity. I live with my heating pad, I carry one in my purse. Really, seriously.. no joke! They are the best invention EVER!</p>
<p>I have a dirt bike and LOVE to go out and play and have fun but 80% of the time I&#8217;m unable to and it&#8217;s SO SAD. I&#8217;m missing out on life. When I think about it I cry, like now. This is a horrible disorder that has haunted me for almost 16yrs. It completely grabs me when I think about all these yrs that I have suffered. You know this is heredity (don&#8217;t think I spelled that right, sorry), both my aunts have this and my grandmother did too. But they all had kids young and had full Hystos. Plussss LUCKY me I have it the worst out of them all. So bad I had to have my appendix remove and it&#8217;s now covered my intestines, bladder, uterus&#8230;just about everything. My whole abdominal cavity I&#8217;ve had lasered as well as cauterized. It just gets worse and; worse. It&#8217;s even on my friggin liver! I mean come on! <img src='http://www.vitalhealth.com/blog/wp-includes/images/smilies/icon_sad.gif' alt=':(' class='wp-smiley' />  </p>
<p>I stopped taking birth control a year &#038; a half ago. No babies! So I have an appt with a fertility Dr in 3 weeks to see if I&#8217;m fertile. I&#8217;m nervous, I already know the answer without going but I have to so I have no regrets. I don&#8217;t believe in IVF so it&#8217;s adoption for me. I guess that&#8217;s my path. </p>
<p>I feel so bad for anyone who has this disorder. It&#8217;s very misunderstood and not very accepted. Most people think you are faking the pain and even most Dr&#8217;s are leery about what&#8217;s going on inside and; can&#8221;t just cut you open to see.</p>
<p>I&#8217;ve been in and out of the ER so many times it&#8217;s unbelievable, but I do have to say since I&#8217;ve been off the pill I actually have LESS cramps. But I have had multiple transfusions from the bleeding.</p>
<p>So I wish everyone you all the best of luck and health! Happy 2012!</p>
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		<title>Comment on What It Really Means to Have Endometriosis by Naomi</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-34594</link>
		<dc:creator>Naomi</dc:creator>
		<pubDate>Thu, 19 Jan 2012 03:25:51 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-34594</guid>
		<description>It&#039;s weird, I don&#039;t usually talk about my pain to anyone. I have been so used to having to fight daily for my health and my sanity that I think sometimes I think I truly do forget the REALITY of my situation. Recently through positive life changing events I have been stripped bare of false identities of me, (of all the things I wanted to be or others wanted me to be)  with this I have joined a greater awareness between  my body and my mind. My experiences tell me that there is a great healing power within. I have an appt. with my OBGYN in less than 3 weeks, I am a little nervous, this will be my 4th surgery in the past 8 1/2 years. Now there&#039;s some perspective. Endometriosis is a root to not only physical but emotional pain for me. I&#039;m going to ask my wife for a hysterectomy this holiday :) Day to day I try to maintain moderate homeostasis by taking supplements for the pain.. Vitamin E enhances the production of B- cells, the immune cells that produce antibodies that destroy bacteria. It&#039;s easy to get 30 to 60 milligrams every day of Vitamin E from a diet rich in seeds, vegetable oils, and grains. (flax seed is my favorite it contains both vitamin E &amp; fiber). I also take Melaluca cranberry tablets, with the endo I am also HIGHLY prone to bladder infections, this is a great preventative, 
Anyway I have blabbed on long enough, I am so glad that I found this website tonight, it&#039;s refreshing and I going to need people to talk to about this in the months ahead!</description>
		<content:encoded><![CDATA[<p>It&#8217;s weird, I don&#8217;t usually talk about my pain to anyone. I have been so used to having to fight daily for my health and my sanity that I think sometimes I think I truly do forget the REALITY of my situation. Recently through positive life changing events I have been stripped bare of false identities of me, (of all the things I wanted to be or others wanted me to be)  with this I have joined a greater awareness between  my body and my mind. My experiences tell me that there is a great healing power within. I have an appt. with my OBGYN in less than 3 weeks, I am a little nervous, this will be my 4th surgery in the past 8 1/2 years. Now there&#8217;s some perspective. Endometriosis is a root to not only physical but emotional pain for me. I&#8217;m going to ask my wife for a hysterectomy this holiday <img src='http://www.vitalhealth.com/blog/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  Day to day I try to maintain moderate homeostasis by taking supplements for the pain.. Vitamin E enhances the production of B- cells, the immune cells that produce antibodies that destroy bacteria. It&#8217;s easy to get 30 to 60 milligrams every day of Vitamin E from a diet rich in seeds, vegetable oils, and grains. (flax seed is my favorite it contains both vitamin E &amp; fiber). I also take Melaluca cranberry tablets, with the endo I am also HIGHLY prone to bladder infections, this is a great preventative,<br />
Anyway I have blabbed on long enough, I am so glad that I found this website tonight, it&#8217;s refreshing and I going to need people to talk to about this in the months ahead!</p>
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		<title>Comment on What It Really Means to Have Endometriosis by Lauren</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-34459</link>
		<dc:creator>Lauren</dc:creator>
		<pubDate>Tue, 17 Jan 2012 23:35:11 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-34459</guid>
		<description>I am only 26 years old, but I have been dealing with chronic pain my entire life.  It started off as what they labeled IBS, and even though that was my label as a child the older I got in growth and puberty the pain and constant upset stomach got worse.  I was in the schools nurses’ office between 3-5 times and week, and most of those times my mom had to leave work and pick me up.  I went from doctor to doctor yet no one knew what to say because there was never any evidence to diagnose a real problem.  My menstrual cycle was always extremely painful, and many times I was not able to focus while waiting for the Advil to kick in.  As I got older, again, the pain continued to get worse and once I turned 21 I woke up one night in so much pain I was rushed to the ER.  Still no one had any answers, and that same week I was again rushed back to the ER.  Soon after, the doctors concluded that I “Might” have Endometriosis since my mother was diagnosed in the early-mid 1990’s, and Diagnosed with Adnomyosis in 2004.  They didn’t perform surgery at the time because I had no health insurance…So, they put me on Lupron for 6months. Lupron was one of the worst drugs I’ve ever been exposed to, but it outweighed the extreme 24/7 pain I was in.  My options where to either continue taking 35 Advil a day (which really wasn’t an option), or Lupron.  Once Lupron was not an option they switched me to my nightmare, Depo Provera.  I was on Depo for about 5 years straight and had to come off of it due to a recent discovery that I have Osteopenia in my spine, and slowly reduced bone loss everywhere else.  I was seeing a Gyne pain specialist for about a year or two before I asked to have a Laparoscopy done to find out officially if I had any physical signs visible.  Once the surgery was done they told me my uterus was 100% normal looking in size and shape; that I had no signs of lesions or scars.  Unfortunately, I realized later that the surgeon did not perform a biopsy, and being a Surgical Technologist I know that in these types of diseases you need a biopsy to prove negative on a microscopic level, and also in my case I was treated for Endo long before I had surgery so visual signs of Endo may have cleared or be considered invisible.  I feel that the surgeon helped me eliminate others concerns, but didn’t really do his job in helping me in an official diagnosis.  I am very lost, angry, sad, and uncertain of which doctor or doctors can really help me find the answers I seek.  I am only 26 years old so a hysterectomy is out of the question, and the “urge” to have children, if I can one day, is hard to cope with seeing hysterectomy is in my cards. I know that treatments will be the same regardless of an official diagnosis, but it would really help me to cope better with understanding and having something set in stone.  I’ve suffered in pain since I was old enough to remember, and with my limitations I am now stuck on Loestrin 24 FE till I can find someone to really have empathy, compassion, and understanding that this disease has controlled every aspect of my life.  I have missed so much schooling, family life, events with friends, and struggles to go forward with my goals and passions.  Sadly, the only people that really understand are those who live the grind every day, and the TRUE doctors and nurses that are REALLY trying to find answers and help.</description>
		<content:encoded><![CDATA[<p>I am only 26 years old, but I have been dealing with chronic pain my entire life.  It started off as what they labeled IBS, and even though that was my label as a child the older I got in growth and puberty the pain and constant upset stomach got worse.  I was in the schools nurses’ office between 3-5 times and week, and most of those times my mom had to leave work and pick me up.  I went from doctor to doctor yet no one knew what to say because there was never any evidence to diagnose a real problem.  My menstrual cycle was always extremely painful, and many times I was not able to focus while waiting for the Advil to kick in.  As I got older, again, the pain continued to get worse and once I turned 21 I woke up one night in so much pain I was rushed to the ER.  Still no one had any answers, and that same week I was again rushed back to the ER.  Soon after, the doctors concluded that I “Might” have Endometriosis since my mother was diagnosed in the early-mid 1990’s, and Diagnosed with Adnomyosis in 2004.  They didn’t perform surgery at the time because I had no health insurance…So, they put me on Lupron for 6months. Lupron was one of the worst drugs I’ve ever been exposed to, but it outweighed the extreme 24/7 pain I was in.  My options where to either continue taking 35 Advil a day (which really wasn’t an option), or Lupron.  Once Lupron was not an option they switched me to my nightmare, Depo Provera.  I was on Depo for about 5 years straight and had to come off of it due to a recent discovery that I have Osteopenia in my spine, and slowly reduced bone loss everywhere else.  I was seeing a Gyne pain specialist for about a year or two before I asked to have a Laparoscopy done to find out officially if I had any physical signs visible.  Once the surgery was done they told me my uterus was 100% normal looking in size and shape; that I had no signs of lesions or scars.  Unfortunately, I realized later that the surgeon did not perform a biopsy, and being a Surgical Technologist I know that in these types of diseases you need a biopsy to prove negative on a microscopic level, and also in my case I was treated for Endo long before I had surgery so visual signs of Endo may have cleared or be considered invisible.  I feel that the surgeon helped me eliminate others concerns, but didn’t really do his job in helping me in an official diagnosis.  I am very lost, angry, sad, and uncertain of which doctor or doctors can really help me find the answers I seek.  I am only 26 years old so a hysterectomy is out of the question, and the “urge” to have children, if I can one day, is hard to cope with seeing hysterectomy is in my cards. I know that treatments will be the same regardless of an official diagnosis, but it would really help me to cope better with understanding and having something set in stone.  I’ve suffered in pain since I was old enough to remember, and with my limitations I am now stuck on Loestrin 24 FE till I can find someone to really have empathy, compassion, and understanding that this disease has controlled every aspect of my life.  I have missed so much schooling, family life, events with friends, and struggles to go forward with my goals and passions.  Sadly, the only people that really understand are those who live the grind every day, and the TRUE doctors and nurses that are REALLY trying to find answers and help.</p>
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		<title>Comment on What It Really Means to Have Endometriosis by Tracy</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-34411</link>
		<dc:creator>Tracy</dc:creator>
		<pubDate>Tue, 17 Jan 2012 14:31:36 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-34411</guid>
		<description>Ladies, there is hope for us we just have to be willing and able to search it out. I had a partial hysterectomy to find out that I now have endo, I have also found that it will take a body and mind make over to help with this pain, because what we are not told is there is no cure for what we have. We have to change what we eat, what think and try to control our stress levels. Hope this is inspiration to you all.</description>
		<content:encoded><![CDATA[<p>Ladies, there is hope for us we just have to be willing and able to search it out. I had a partial hysterectomy to find out that I now have endo, I have also found that it will take a body and mind make over to help with this pain, because what we are not told is there is no cure for what we have. We have to change what we eat, what think and try to control our stress levels. Hope this is inspiration to you all.</p>
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		<title>Comment on What It Really Means to Have Endometriosis by Julie</title>
		<link>http://www.vitalhealth.com/blog/endometriosis/what-it-really-means-to-have-endometriosis/comment-page-5/#comment-34175</link>
		<dc:creator>Julie</dc:creator>
		<pubDate>Mon, 16 Jan 2012 03:52:01 +0000</pubDate>
		<guid isPermaLink="false">http://www.vitalhealth.com/blog/?p=138#comment-34175</guid>
		<description>My daughter has endometriosis. It has gotten so bad that she has to be on pain pills most of the time. She sleeps a lot, and I worry, not only for her, but for her boys. I had no idea just how bad it was until I found a book at the bookstore and read up on it. Now I know, or I should say, I have a better understanding of the disease. I wish there was something I could do for her. I feel so helpless. I just want it to go away so that she can live again. So that she and her boys can have a happy life.</description>
		<content:encoded><![CDATA[<p>My daughter has endometriosis. It has gotten so bad that she has to be on pain pills most of the time. She sleeps a lot, and I worry, not only for her, but for her boys. I had no idea just how bad it was until I found a book at the bookstore and read up on it. Now I know, or I should say, I have a better understanding of the disease. I wish there was something I could do for her. I feel so helpless. I just want it to go away so that she can live again. So that she and her boys can have a happy life.</p>
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